My Family

My Family

Monday, June 25, 2012

My Monkey's heart.

Today was an extremely long day, we were up at 5 this morning and hit the road to the Amplatz Children's Hospital at the University of Minnesota to see Cameron's cardiologist.  It may seem silly to drive that far to a doctor, but when you have a good relationship and your child actually ENJOYS going there, well, you deal with it.  I received a lot of questions about what was "wrong" with my boy. This happens a lot when we mention going to the cardiologist. So, I thought I would take a few moments to fill you in on why I spend an entire day in the car to visit this awesome doctor.
When Cameron was born, we had some issues with an irregular heart beat...poor kid. But by the time we went home, all was well.  When he was 15 months old, his pediatrician detected a murmur.  Honestly, this was no surprise, as Jimmy has one and so does my stepson, Drake.  The first visit to the cardiologist was scarier for me than for him, he acted like such a big boy.  We found what we already knew he had, a VSD, or ventricular septal defect.  Basically, Cameron has a hole in the septum of his heart between the two lower chambers.  In Jimmy's case, the hole has grown smaller with age and is in a location that doesn't cause him any trouble.  Same goes for Drake.  But, Cameron's is a little different.  His hole is below his aortic valve and has caused a bit of an issue, and so we have to watch more it often.
Today, however, when we were at the clinic, there were no changes and is valve is looking pretty good. So we get to wait another year to see Dr. Kaplan again.  Dr. Kaplan is an "old school" doctor, he doesn't like spending all his time with us typing information onto our electronic charts.  Instead, he sits and chats, and really has taken the time to get to know us as a family.  If I call him and give him my name, he knows exactly who I am and what my child's name is...you really can't beat that.
Eventually, Cameron's hole will have to be fixed so that he won't have issues later on in life with the valve.  But for right now, he is doing great and has no restrictions, except that he has to take antibiotics before going to the dentist.  I would be lying if I said I wasn't dreading the day they tell me it's time for surgery.  It terrified me when they brought it up all those years ago.  The thought of my baby having open heart surgery....makes me want to cry just thinking about it.  Cameron knows it's bound to happen, and he gets a little nervous every time we go in for an echo.  As I tell him every time, we will deal with it when we get there.  Still, the idea is always in the back of my mind.
There could be worse things, and I am so grateful to have such an amazing boy.  And so, for now, we move on.  -K

Thursday, June 21, 2012

It's been one wild month!!

Well...it's been just about a month since my last post.  A whole lot has happened in the last few weeks, it's hard to know where to start.  The move went fairly smoothly, a few little hiccups here and there and our timeline was a bit off (my biggest pet peeve).  And now, nearly a month in, and we're finally close to completely unpacked.  I had a hard time motivating myself to get it all done, and with the kids home and the exploration of our new town, I've been terribly distracted.  My craft room was supposed to be one of the first rooms done, and it is going to be one of the last.  Our master bedroom has yet to be painted, and the family room is not yet painted.  My kitchen is fully functional, and that's the most important room anyway.
We've enjoyed a few events here in our new area already.  A family fun night with free bounce houses (I love free), Old Settlers Day in Jimmy's hometown (well I was a craft vendor, but still), and today the kids and I went to the Howard County Fair. (MN friends...there is no admission or parking fee here!!)  I have taken a trip to the thrift stores in town...yes, there's more than one! (retreat girls...you really must visit). We've found a new dance school for A, cheaper than the last school too! We've visited the school and Seth should be all set with his FM system when school starts.
I've been keeping myself so busy, but am still having a bit of a time adjusting to the change.  It is hard to not really know anyone, and not get a little depressed about it.  I think I may have found a few ways to get myself out there and meet some people though.  Hopefully, that works out.  The kids are missing the old neighborhood something terrible, and it's hard to see them that way.  They ask at least once a week when we're going to Plainview to visit or if their friends can come here to play.  They understand how far away we now live, but can't quite grasp the idea of how much it would be to ask their friends parents to drive them all the way down here.  I know that once school starts again they will very quickly adjust and make new friends, but right now it's a bit of a struggle for them.
In the meantime, my goal is to keep them busy. We go to the library on a regular basis, play at the parks, and now that the bikes are fixed, will be going for bike rides.  There already some familiar faces just doing these things, and hopefully friendships will form that way.  It's going to be summer of adjustments and we'll really get to see what we're made of.  So far, my monsters are doing great and I hope it only gets better for them.  -K